Neurology Reviews®, a Frontline Medical Communications (FMC) print and digital media publication, has announced the publication of the 3rd annual Rare Neurological Disease Special Report™, developed in partnership with NORD, the National Organization for Rare Disorders, the leading independent non-profit representing the 30 million Americans with rare diseases.
Published as a supplement to the March issue of Neurology Reviews®, the 2017 Rare Neurological Disease Special Report™ is the most extensive to date. VP/Group Editor Glenn Williams highlighted this year’s coverage, which includes cannabinoids’ efficacy in rare pediatric epilepsies, new and potential therapies for neuromuscular disorders, and the clinical therapeutic potential of gene therapy; and, he acknowledged contributions from the Keck Graduate Institute, the Child Neurology Foundation, and the LGS Foundation (Lennox-Gastaut Syndrome). In addition, the Hereditary Neuropathy Foundation presented results from the inaugural Patient-Centered Charcot-Marie-Tooth (CMT) Summit, emphasising the importance of patient-reported outcomes data, patient registries/networks, and underscoring the barriers to proper diagnosis, disease management, and treatment options, including gaps in standards of care guidelines.
The 2017 Rare Neurological Disease Special Report™ print issue reaches all neurologists in the U.S., in addition to primary care physicians and NPs and PAs whose practices involve a neurological focus. Reach extends through bonus distribution at major medical conferences (AAN, CMSC, AHS, NORD Summit, AES, etc.); online via the digital edition/app; and through reciprocal links with NORD, patient advocacy groups, and numerous professional associations.
Neurology Reviews® and NORD continue their partnership, bringing essential educational resources to physicians, healthcare professionals, and students, in support of their shared mission — to increase awareness and shorten the time to diagnosis by engaging all stakeholders involved in the screening, early detection, and care of patients with rare diseases. FMC provides regular news coverage of rare disease topics, keeping neurologists, pediatricians, hematologists, oncologists, medical geneticists, primary care physicians, and NPs and PAs informed about the latest information on the symptoms, diagnostic tools, and treatments of rare disorders.
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